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If you ask Charles what his favorite things in life are, he will reply without hesitation that his wife Amber, and two sons Jamey (three) and Max (four) are the lights of his life. Although Charles shares a similar passion for family with many other fathers and husbands, Charles is unique because he suffers from severe hemophilia. Instead of wrestling with his young boys like most fathers, Charles found himself unable to do so due to the severe deterioration of his left knee. After having to consistently miss out on play time with Max and Jamey, it became clear that ...
Ankle fusion. Sounds completely medieval. In a sense it is and I have had two of them now. My first was about five years ago, and my second was done recently on my right ankle July 13, 2011. Why must one have an ankle fusion? Well if you have severe hemophilia A and were born before the age of Prophylaxis the reason is simple. Chronic bleeding episodes over a lifetime, mostly during the first 18 years of life, eventually breakdown all of the cartilage in the ankle joint leaving an extremely painful grinding of bone on bone. The only way ...
Dads, do you know what I think is one of the best fitness exercises to do with and teach to your kids…Rope Climbing. We just built a climbing wall at our ranch, and it has been one of the best things for teaching my son, and others kids, to not only climb but to build strength and courage to do things that they were first afraid to do. One day, a rock climber friend of mine said, “Andy, you need a few ropes hanging from trees to teach kids to climb up, and they would be good for you, too.” ...
It’s time for an update on this year’s Washington Days and our community’s trip to Capitol Hill. There were about 300 people from the hemophilia community in DC lobbying regarding healthcare from February 17th, 2011. Our small group from consisted of Texas Central Chapter and the Lone Star Chapter Texas and we had an awesome day on the hill! Washington is a really a busy place right now with Congress setting the new budget, but I think we made some progress. The results are as follows. First of all, I think almost everyone would agree that what we have fought hard ...
My name is Jonathan and I want to update you on some exciting things happening with our non-profit Hope for Hemophilia. I am pleased to announce that Hope for Hemophilia is actively helping hemophiliacs and their families in times of crisis through financial assistance, education and practical help. Close friends who love us started Hope for Hemophilia for my family. They saw the great need we were in due to my severe bleeding and the numerous surgeries that I have had over the past five years. But, I did not want to be the only one receiving such an act of ...
Yesterday at 4:15 pm, Feb, 20, 2010, sweet baby girl Kelsey Matthews passed away peacefully with her Mom, Dad and big brother Keeton lying by her side. Though her short time on our earth was a struggle from the beginning until the end, Kelsey touched the lives of so many people in ways she will never know. Kelsey's mother Patti created a blog - theupfamily.blogspot.com which chronicled Kelsey's journey as she fought to overcome so many enormous medical obstacles. Though she was unable to make it on this earth - her story was followed by so many people, including complete strangers, ...
The Gears for Good bike ride for HFA was held from September 15-17, 2011. There were about a dozen people riding and boy, was this a tough ride, but a ride of a life time. We started out in Washington DC and drove about two hours away to the beginning of the ride down the C & O Canal that went along the beautiful Potomac River for 155 miles. It took a while for us all the get ready but once we took off we moved along quite quickly. I remember thinking that our tour leader was going to be one ...
If you ask Charles what his favorite things in life are, he will reply without hesitation that his wife Amber, and two sons Jamey (three) and Max (four) are the lights of his life. Although Charles shares a similar passion for family with many other fathers and husbands, Charles is unique because he suffers from [...]
Sweet Affliction now has a Facebook fan page! Please visit our page and click on like! You can also follow us on twitter!
Ankle fusion. Sounds completely medieval. In a sense it is and I have had two of them now. My first was about five years ago, and my second was done recently on my right ankle July 13, 2011. Why must one have an ankle fusion? Well if you have severe hemophilia A and were born [...]
Dads, do you know what I think is one of the best fitness exercises to do with and teach to your kids…Rope Climbing. We just built a climbing wall at our ranch, and it has been one of the best things for teaching my son, and others kids, to not only climb but to build [...]
Spinning for Stronger Veins by Andy Matthews As a person living with hemophilia, I love anything to do with fitness and building great veins. From the time I was a small boy I always wanted to be as strong as I could. I have come across a great item that I think will really help build [...]
Andy Matthews’ Hep C Treatment Blog Jan 10th 2012 Well, it’s almost been three months and the test results show I have cleared the virus….now, if it will only stay cleared!! I would recommend this treatment to anyone to clear hep-c. Honestly, I really don’t feel bad except for the first two days after the [...]
The Gears for Good bike ride for HFA was held from September 15-17, 2011. There were about a dozen people riding and boy, was this a tough ride, but a ride of a life time. We started out in Washington DC and drove about two hours away to the beginning of the ride down the [...]
