FLYING HIGH WITH HEMOPHILIA

Have you ever had a dream that you just knew you had to fulfill?  Something you just knew your life would not be complete without?  So it was for “Brownie”, a thirty-something airline pilot living (and flying) with hemophilia.
Brownie started flying at the ripe old age of ten.  His first flight lesson recorded in his [...]

Get ready for the next play…..Baseball – A good Life Lesson

Fourteen year old Michael Schnitker is a boy on a mission, a boy with plenty of determination.  He is a boy who loves baseball, and doesn’t let his hemophilia keep him from playing the sport that he loves.   He does remember a time when he really wanted to play football, but soon learned that baseball [...]

Jeryn’s Story

On November 11, 2005 my 11 month old son was diagnosed with severe Hemophilia A. We began infusing him with factor VIII for bleeds. Within 4 months, we began to notice the factor was not healing him as quickly. It was around then that we found out about his inhibitor. After lengthy discussion with his [...]

Kelsey: Our Little “Up” Baby

Article Update – since this article was originally written Patti Matthews has developed a separate blog site for Kelsey which you can visit at www.theupfamily.blogspot.com . Here you can get daily updates on Kelsey’s progress.
I wanted to write an article about the unexpected coming of our new little baby and how surprises come in [...]

Make Needle Sticks A Treat!

At my speaking engagements, I always mention that if you can deal with hemophilia, then you can deal with anything life throws at you. Kids need to be proud of their hemophilia and learn to tell their friends about it in a positive way. I also believe  that by being brave enough to infuse [...]

Browse the Archive

Recent Thoughts

Sweet Kelsey Girl August 4, 2009 – February 20, 2010

Yesterday at 4:15 pm, Feb, 20, 2010,  sweet baby girl Kelsey Matthews passed away peacefully with her Mom, Dad and big brother Keeton lying by her side. Though her short time on our earth was a struggle from the beginning until the end, Kelsey touched the lives of so many people in ways she will [...]

getting your flu shot? Infuse before you do!

Yeah so my doctor calls me and tells me I need to get the regular flu shot, a pneumonia shot, and the swine flu shot as soon as I am able to get in. So dutifully I made my appointment yesterday and went in this morning for the first two shots. As a precaution I [...]

Current Discussions

luke zankich: I am 39 and severe. Obviously growing up severe wi...

luke zankich: I am about your age, I'm 39. I have severe hemoph...

Trish Taychouri: G'day from Australia! What a great website! Makes...

Lisa Grasshoff: Andy, I am so sorry for your loss of Kelsey. The...

Dolores Mueller: I am the mother of 2 adult sons with classic sever...