Browsing all posts in Hemophilia Advocacy.

Lessons on Prophylaxis

My name is Jonathan and I have severe Hemophilia A. I am 31 years old, married to the love of my life, have four kids, and I am a Financial Advisor. I have a real passion for the hemophilia community and am constantly looking for ways to give back. My wife and I started a [...]

Insurance Lifetime Caps Bill Introduced

The following news just came to me via email from NHF. If this bill eventually passes it would be an incredible accomplishment for our community and everyone faced with lifetime insurance cap issues.  Lifetime Caps Bill Introduced   On Friday, February 13, 2009, Anna G. Eshoo (D-CA) and Jim Langevin (D-RI), along with Senators Byron [...]