Browsing all posts in Hemophilia Advocacy.

Hep C Treatment Blog

Andy Matthews’ Hep C Treatment Blog Jan 10th 2012 Well, it’s almost been three months and the test results show I have cleared the virus….now, if it will only stay cleared!!  I would recommend this treatment to anyone to clear hep-c.  Honestly, I really don’t feel bad except for the first two days after the [...]

Andy Matthews: Given a Gift Video

Recently, Andy Matthews was interviewed by the Hemophilia Federation while at Capital Hill during Washington Days. This is the video of that interview. It has a little bit of everything from the history of growing up with hemophilia to excepting your hemophilia as a gift and as the lot you were dealt with. We hope [...]

Washington Days: Update on Healthcare Reform

It’s time for an update on this year’s Washington Days and our community’s trip to Capitol Hill.  There were about 300 people from the hemophilia community in DC lobbying regarding healthcare from February 17th, 2011.    Our small group from consisted of Texas Central Chapter and the Lone Star Chapter Texas and we had an awesome [...]

Spinning for Stronger Veins

Spinning for Stronger Veins                                                                             by Andy Matthews As a person living with hemophilia, I love anything to do with fitness and building great veins.  From the time I was a small boy I always wanted to be as strong as I could.  I have come across a great item that I think will really help build [...]

Hope For Hemophilia

My name is Jonathan and I want to update you on some exciting things happening with our non-profit Hope for Hemophilia.  I am pleased to announce that Hope for Hemophilia is actively helping hemophiliacs and their families in times of crisis through financial assistance, education and practical help. Close friends who love us started Hope [...]

Lessons on Prophylaxis

My name is Jonathan and I have severe Hemophilia A. I am 31 years old, married to the love of my life, have four kids, and I am a Financial Advisor. I have a real passion for the hemophilia community and am constantly looking for ways to give back. My wife and I started a [...]

Insurance Lifetime Caps Bill Introduced

The following news just came to me via email from NHF. If this bill eventually passes it would be an incredible accomplishment for our community and everyone faced with lifetime insurance cap issues.  Lifetime Caps Bill Introduced   On Friday, February 13, 2009, Anna G. Eshoo (D-CA) and Jim Langevin (D-RI), along with Senators Byron [...]