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Browsing all posts in Hemophilia Advocacy.

Hemophilia Survey for $

Beacon Healthcare Communications, a healthcare communications company, is working on behalf of a pharmaceutical manufacturer in the hemophilia market.  We are in the process of recruiting patients (18 years old and older) and caregivers of children (12 to 17 years old) with either hemophilia A or B to participate in a very brief market research […]

Market Research Survey

Tribeca Communications, a healthcare communications company, working in the hemophilia community for over 13 years is recruiting patients (18 years old and older) and caregivers of children (12 to 17 years old) with either hemophilia A or B to participate in market research surveys. With the development of new factor products that will eventually be […]

How Half-Life of Factor Really Works

by Andy Matthews with Dr. Mike Wang Bleeds were very common, in the 1970’s when I grew up.  The reason for that was that most people did not have access to factor, and many did not have the capability to use factor or Cryoprecipitate at home.  However, even today, there are many reasons why adult […]

A Great new Factor Log App from MicroHealth

Growing up I’ve always had an entrepreneurial spirit. My family will tell you about Halloween in my early years in which I would collect all the candy around the neighborhood and immediately bring it all back home and stick a price tag on it and sell it to friends around the neighborhood after Halloween. My […]

Washington Days 2012

Washington Days 2012 was held from March 8-9 of this year. What is Washington Days? It is an event that NHF puts on every year that is de-signed to get people in the bleeding disorders community to Capitol Hill to raise awareness of bleeding disorders and the issues that affect us. Most chapters send one to two […]

Hep C Treatment Blog

Andy Matthews’ Hep C Treatment Blog December 30, 2012 Well, I have been very bad about keep up this post but really once you are on this therapy and it has cleared the virus and you are past most of the bad symptoms, there is not much to post.  The day of or after my […]

Andy Matthews: Given a Gift Video

Recently, Andy Matthews was interviewed by the Hemophilia Federation while at Capital Hill during Washington Days. This is the video of that interview. It has a little bit of everything from the history of growing up with hemophilia to excepting your hemophilia as a gift and as the lot you were dealt with. We hope […]

Washington Days: Update on Healthcare Reform

It’s time for an update on this year’s Washington Days and our community’s trip to Capitol Hill.  There were about 300 people from the hemophilia community in DC lobbying regarding healthcare from February 17th, 2011.    Our small group from consisted of Texas Central Chapter and the Lone Star Chapter Texas and we had an awesome […]

Spinning for Stronger Veins

Spinning for Stronger Veins                                                                             by Andy Matthews As a person living with hemophilia, I love anything to do with fitness and building great veins.  From the time I was a small boy I always wanted to be as strong as I could.  I have come across a great item that I think will really help build […]

Hope For Hemophilia

My name is Jonathan and I want to update you on some exciting things happening with our non-profit Hope for Hemophilia.  I am pleased to announce that Hope for Hemophilia is actively helping hemophiliacs and their families in times of crisis through financial assistance, education and practical help. Close friends who love us started Hope […]