Browsing all posts in Hemophilia Stories.
Market Research Survey
Tribeca Communications, a healthcare communications company, working in the hemophilia community for over 13 years is recruiting patients (18 years old and older) and caregivers of children (12 to 17 years old) with either hemophilia A or B to participate in market research surveys. With the development of new factor products that will eventually be […]
Cycling Across America to Support Save One Life!
This Sunday, June 17, cyclist Barry Haarde, age 46, who has severe hemophilia A, will start a coast-to-coast 3,667-mile bike ride to raise funds for Save One Life. The ride will start in Astoria, Oregon, and end in Portsmouth, New Hampshire where he will arrive on August 6. This is the first time someone will […]
The Awesome Benefits of Taekwondo
My wife Patti and I have a 5 1/2 year old son who is very active and “all boy all of the time,” if you know what I mean! We were looking for some type of sport that our son would love but one that would also teach him to focus his energy and to have […]
A Great new Factor Log App from MicroHealth
Growing up I’ve always had an entrepreneurial spirit. My family will tell you about Halloween in my early years in which I would collect all the candy around the neighborhood and immediately bring it all back home and stick a price tag on it and sell it to friends around the neighborhood after Halloween. My […]
Washington Days 2012
Washington Days 2012 was held from March 8-9 of this year. What is Washington Days? It is an event that NHF puts on every year that is de-signed to get people in the bleeding disorders community to Capitol Hill to raise awareness of bleeding disorders and the issues that affect us. Most chapters send one to two […]
Hep C Treatment Blog
Andy Matthews’ Hep C Treatment Blog December 30, 2012 Well, I have been very bad about keep up this post but really once you are on this therapy and it has cleared the virus and you are past most of the bad symptoms, there is not much to post. The day of or after my […]
Gears for Good
The Gears for Good bike ride for HFA was held from September 15-17, 2011. There were about a dozen people riding and boy, was this a tough ride, but a ride of a life time. We started out in Washington DC and drove about two hours away to the beginning of the ride down the […]
WRESTLING TO GET A KNEE REPLACEMENT
If you ask Charles what his favorite things in life are, he will reply without hesitation that his wife Amber, and two sons Jamey (three) and Max (four) are the lights of his life. Although Charles shares a similar passion for family with many other fathers and husbands, Charles is unique because he suffers from […]
Our Co-Founder David gets another ankle fusion
Ankle fusion. Sounds completely medieval. In a sense it is and I have had two of them now. My first was about five years ago, and my second was done recently on my right ankle July 13, 2011. Why must one have an ankle fusion? Well if you have severe hemophilia A and were born […]
Andy Matthews: Given a Gift Video
Recently, Andy Matthews was interviewed by the Hemophilia Federation while at Capital Hill during Washington Days. This is the video of that interview. It has a little bit of everything from the history of growing up with hemophilia to excepting your hemophilia as a gift and as the lot you were dealt with. We hope […]
