Browsing all posts in Hemophilia Stories.
Flying High With Hemophilia
Have you ever had a dream that you just knew you had to fulfill? Something you just knew your life would not be complete without? So it was for “Brownie”, a thirty-something airline pilot living (and flying) with hemophilia. Brownie started flying at the ripe old age of ten. His first flight lesson recorded in [...]
Upcoming Hemophilia Sports Broadcaster
Twenty –one year old Andrew Schnitker has always loved football and hockey; and even though he has severe factor VIII hemophilia, these sports will continue to be a huge part of his life. That’s right, because even though Andrew can’t play these sports due to two target knee joints, he has high hopes of becoming [...]
Jeryn’s Story
On November 11, 2005 my 11 month old son was diagnosed with severe Hemophilia A. We began infusing him with factor VIII for bleeds. Within 4 months, we began to notice the factor was not healing him as quickly. It was around then that we found out about his inhibitor. After lengthy discussion with his [...]
Kelsey: Our Little “Up” Baby
Article Update – since this article was originally written Patti Matthews has developed a separate blog site for Kelsey which you can visit at www.theupfamily.blogspot.com . Here you can get daily updates on Kelsey’s progress. I wanted to write an article about the unexpected coming of our new little baby and how surprises come in [...]
PRAYERS FOR BABY KELSEY
Our Sweetaffliction.com co-founder Andy Matthews and his wife Patti had a big surprise on Tuesday August 4, 2008. To everyone’s surprise their new baby Kelsey decided to make her appearance at 12:20 pm. She weighed 3 pounds 12 ounces and is 15 inches long! Patti went in for a normal sonogram that morning and the [...]
Make Needle Sticks A Treat!
At my speaking engagements, I always mention that if you can deal with hemophilia, then you can deal with anything life throws at you. Kids need to be proud of their hemophilia and learn to tell their friends about it in a positive way. I also believe that by being brave enough to infuse themselves [...]
Reflections on My knee replacement
Recently one of our sweetaffliction.com readers posted a comment on David Simmons’ knee replacement article. It seems our reader Greg did not have as positive an experience with his knee replacement as David Simmons did. Well unfortunately neither did I. We are not trying to persuade anyone needing a knee replacement not to get one [...]
Baseball, Hotdogs, Apple Pie and Hemophilia
Below is our first blog post from a mother – we hope you enjoy this entry about Kyle – future second baseman of the Texas Rangers! Baseball…As American as apple pie, right? But, until recently, most hemophiliacs were discouraged from playing the sport, told the risk outweighed any possible benefits. Well, tell that to [...]
I have Severe Hemophilia and had a total Knee replacement!
The following article was written by our first guest blogger – David Simmons. It chronicles his decision on getting a knee replacement despite having severe Hemophilia. I had always known, following an inability to get rid of a stubborn limp after college and upon receiving several opinions from orthopedic surgeons, that I would someday require [...]
Helping Those with Hemophilia in Other Parts of the World
I wrote this article that appeared in the “OneVoice” August 2008 newsletter for the Save One Life organization. Sweet Affliction would like to share it with you! It is titled: Why I am so passionate about giving back to hemophilia worldwide……..And why you should be too! At age 42, with all the problems that come [...]