Browsing all posts in Recent Thoughts.
Hep C Treatment Blog
Andy Matthews’ Hep C Treatment Blog Jan 10th 2012 Well, it’s almost been three months and the test results show I have cleared the virus….now, if it will only stay cleared!! I would recommend this treatment to anyone to clear hep-c. Honestly, I really don’t feel bad except for the first two days after the [...]
Gears for Good
The Gears for Good bike ride for HFA was held from September 15-17, 2011. There were about a dozen people riding and boy, was this a tough ride, but a ride of a life time. We started out in Washington DC and drove about two hours away to the beginning of the ride down the [...]
Andy Matthews: Given a Gift Video
Recently, Andy Matthews was interviewed by the Hemophilia Federation while at Capital Hill during Washington Days. This is the video of that interview. It has a little bit of everything from the history of growing up with hemophilia to excepting your hemophilia as a gift and as the lot you were dealt with. We hope [...]
Washington Days: Update on Healthcare Reform
It’s time for an update on this year’s Washington Days and our community’s trip to Capitol Hill. There were about 300 people from the hemophilia community in DC lobbying regarding healthcare from February 17th, 2011. Our small group from consisted of Texas Central Chapter and the Lone Star Chapter Texas and we had an awesome [...]
Bad Blood Documentary Trailer
Through the eyes of survivors and family members, BAD BLOOD chronicles how a “miracle” treatment for hemophilia became an agent of death for 10,000 Americans. Faced with evidence that pharmaceutical companies and government regulators knew the product was contaminated with deadly viruses, the hemophilia community launched a powerful and inspiring fight to right the system [...]
Flying High With Hemophilia
Have you ever had a dream that you just knew you had to fulfill? Something you just knew your life would not be complete without? So it was for “Brownie”, a thirty-something airline pilot living (and flying) with hemophilia. Brownie started flying at the ripe old age of ten. His first flight lesson recorded in [...]
Health Care Reform: What’s happening – how and when it will affect us
Here is our first attempt at summarizing key points from the new Health Care Reform Bill. We wanted to give you at least a timeline of things that will be happening soon and in the years to come. We would like to make it clear that we are not trying to take sides as to [...]
Sweet Kelsey Girl August 4, 2009 – February 20, 2010
Yesterday at 4:15 pm, Feb, 20, 2010, sweet baby girl Kelsey Matthews passed away peacefully with her Mom, Dad and big brother Keeton lying by her side. Though her short time on our earth was a struggle from the beginning until the end, Kelsey touched the lives of so many people in ways she will [...]
getting your flu shot? Infuse before you do!
Yeah so my doctor calls me and tells me I need to get the regular flu shot, a pneumonia shot, and the swine flu shot as soon as I am able to get in. So dutifully I made my appointment yesterday and went in this morning for the first two shots. As a precaution I [...]
The Most Wonderful Day of the Year, if You are Prepared!
With the start of school just around the corner, it is time for us parents of kids with hemophilia to begin planning our annual meeting with our child’s new teacher. Back to school can be an intimidating time if you have a child with hemophilia. It can be scary to be leaving your child, in [...]