Browsing all posts in Recent Posts.
Sweet Kelsey Girl August 4, 2009 – February 20, 2010
Yesterday at 4:15 pm, Feb, 20, 2010, sweet baby girl Kelsey Matthews passed away peacefully with her Mom, Dad and big brother Keeton lying by her side. Though her short time on our earth was a struggle from the beginning until the end, Kelsey touched the lives of so many people in ways she will [...]
Lessons on Prophylaxis
My name is Jonathan and I have severe Hemophilia A. I am 31 years old, married to the love of my life, have four kids, and I am a Financial Advisor. I have a real passion for the hemophilia community and am constantly looking for ways to give back. My wife and I started a [...]
FLYING HIGH WITH HEMOPHILIA
Have you ever had a dream that you just knew you had to fulfill? Something you just knew your life would not be complete without? So it was for “Brownie”, a thirty-something airline pilot living (and flying) with hemophilia.
Brownie started flying at the ripe old age of ten. His first flight lesson recorded in his [...]
getting your flu shot? Infuse before you do!
Yeah so my doctor calls me and tells me I need to get the regular flu shot, a pneumonia shot, and the swine flu shot as soon as I am able to get in. So dutifully I made my appointment yesterday and went in this morning for the first two shots. As a precaution I [...]
Get ready for the next play…..Baseball – A good Life Lesson
Fourteen year old Michael Schnitker is a boy on a mission, a boy with plenty of determination. He is a boy who loves baseball, and doesn’t let his hemophilia keep him from playing the sport that he loves. He does remember a time when he really wanted to play football, but soon learned that baseball [...]
Jeryn’s Story
On November 11, 2005 my 11 month old son was diagnosed with severe Hemophilia A. We began infusing him with factor VIII for bleeds. Within 4 months, we began to notice the factor was not healing him as quickly. It was around then that we found out about his inhibitor. After lengthy discussion with his [...]
The Most Wonderful Day of the Year, if You are Prepared!
With the start of school just around the corner, it is time for us parents of kids with hemophilia to begin planning our annual meeting with our child’s new teacher. Back to school can be an intimidating time if you have a child with hemophilia. It can be scary to be leaving your child, in [...]
Kelsey: Our Little “Up” Baby
Article Update – since this article was originally written Patti Matthews has developed a separate blog site for Kelsey which you can visit at www.theupfamily.blogspot.com . Here you can get daily updates on Kelsey’s progress.
I wanted to write an article about the unexpected coming of our new little baby and how surprises come in [...]
PRAYERS FOR BABY KELSEY
Our Sweetaffliction.com co-founder Andy Matthews and his wife Patti had a big surprise on Tuesday August 4, 2008. To everyone’s surprise their new baby Kelsey decided to make her appearance at 12:20 pm. She weighed 3 pounds 12 ounces and is 15 inches long!
Patti went in for a normal sonogram that morning and the doctor [...]
Make Needle Sticks A Treat!
At my speaking engagements, I always mention that if you can deal with hemophilia, then you can deal with anything life throws at you. Kids need to be proud of their hemophilia and learn to tell their friends about it in a positive way. I also believe that by being brave enough to infuse [...]
