Browsing all posts in Recent Posts.
Legislative Day in Texas
We had a great day lobbing in Austin this month and you never know what you will find. When we went into the office of Robert Nichols I was blown away at this lion in his office and that was just the largest animal but there were animals all over the place. That is one [...]
Market Research Survey
Tribeca Communications, a healthcare communications company, working in the hemophilia community for over 13 years is recruiting patients (18 years old and older) and caregivers of children (12 to 17 years old) with either hemophilia A or B to participate in market research surveys. With the development of new factor products that will eventually be [...]
How Half-Life of Factor Really Works
by Andy Matthews with Dr. Mike Wang Bleeds were very common, in the 1970’s when I grew up. The reason for that was that most people did not have access to factor, and many did not have the capability to use factor or Cryoprecipitate at home. However, even today, there are many reasons why adult [...]
PRECIOUS GIFTS
If you know me, you know I talk a lot about how having hemophilia has been a gift because of all the things I feel I get to do and most importantly all the things that I have learned or learned how to handle because of having hemophilia. I have said many times it is a [...]
Cycling Across America to Support Save One Life!
This Sunday, June 17, cyclist Barry Haarde, age 46, who has severe hemophilia A, will start a coast-to-coast 3,667-mile bike ride to raise funds for Save One Life. The ride will start in Astoria, Oregon, and end in Portsmouth, New Hampshire where he will arrive on August 6. This is the first time someone will [...]
The Awesome Benefits of Taekwondo
My wife Patti and I have a 5 1/2 year old son who is very active and “all boy all of the time,” if you know what I mean! We were looking for some type of sport that our son would love but one that would also teach him to focus his energy and to have [...]
A Great new Factor Log App from MicroHealth
Growing up I’ve always had an entrepreneurial spirit. My family will tell you about Halloween in my early years in which I would collect all the candy around the neighborhood and immediately bring it all back home and stick a price tag on it and sell it to friends around the neighborhood after Halloween. My [...]
Washington Days 2012
Washington Days 2012 was held from March 8-9 of this year. What is Washington Days? It is an event that NHF puts on every year that is de-signed to get people in the bleeding disorders community to Capitol Hill to raise awareness of bleeding disorders and the issues that affect us. Most chapters send one to two [...]
Hep C Treatment Blog
Andy Matthews’ Hep C Treatment Blog December 30, 2012 Well, I have been very bad about keep up this post but really once you are on this therapy and it has cleared the virus and you are past most of the bad symptoms, there is not much to post. The day of or after my [...]
Our Co-Founder David gets another ankle fusion
Ankle fusion. Sounds completely medieval. In a sense it is and I have had two of them now. My first was about five years ago, and my second was done recently on my right ankle July 13, 2011. Why must one have an ankle fusion? Well if you have severe hemophilia A and were born [...]