Browsing all posts in Recent Posts.
Bad Blood Documentary Trailer
Through the eyes of survivors and family members, BAD BLOOD chronicles how a “miracle” treatment for hemophilia became an agent of death for 10,000 Americans. Faced with evidence that pharmaceutical companies and government regulators knew the product was contaminated with deadly viruses, the hemophilia community launched a powerful and inspiring fight to right the system [...]
Flying High With Hemophilia
Have you ever had a dream that you just knew you had to fulfill? Something you just knew your life would not be complete without? So it was for “Brownie”, a thirty-something airline pilot living (and flying) with hemophilia. Brownie started flying at the ripe old age of ten. His first flight lesson recorded in [...]
Upcoming Hemophilia Sports Broadcaster
Twenty –one year old Andrew Schnitker has always loved football and hockey; and even though he has severe factor VIII hemophilia, these sports will continue to be a huge part of his life. That’s right, because even though Andrew can’t play these sports due to two target knee joints, he has high hopes of becoming [...]
Health Care Reform: What’s happening – how and when it will affect us
Here is our first attempt at summarizing key points from the new Health Care Reform Bill. We wanted to give you at least a timeline of things that will be happening soon and in the years to come. We would like to make it clear that we are not trying to take sides as to [...]
Sweet Kelsey Girl August 4, 2009 – February 20, 2010
Yesterday at 4:15 pm, Feb, 20, 2010, sweet baby girl Kelsey Matthews passed away peacefully with her Mom, Dad and big brother Keeton lying by her side. Though her short time on our earth was a struggle from the beginning until the end, Kelsey touched the lives of so many people in ways she will [...]
Lessons on Prophylaxis
My name is Jonathan and I have severe Hemophilia A. I am 31 years old, married to the love of my life, have four kids, and I am a Financial Advisor. I have a real passion for the hemophilia community and am constantly looking for ways to give back. My wife and I started a [...]
getting your flu shot? Infuse before you do!
Yeah so my doctor calls me and tells me I need to get the regular flu shot, a pneumonia shot, and the swine flu shot as soon as I am able to get in. So dutifully I made my appointment yesterday and went in this morning for the first two shots. As a precaution I [...]
Get ready for the next play…..Baseball – A good Life Lesson
Fourteen year old Michael Schnitker is a boy on a mission, a boy with plenty of determination. He is a boy who loves baseball, and doesn’t let his hemophilia keep him from playing the sport that he loves. He does remember a time when he really wanted to play football, but soon learned that baseball [...]
Jeryn’s Story
On November 11, 2005 my 11 month old son was diagnosed with severe Hemophilia A. We began infusing him with factor VIII for bleeds. Within 4 months, we began to notice the factor was not healing him as quickly. It was around then that we found out about his inhibitor. After lengthy discussion with his [...]
The Most Wonderful Day of the Year, if You are Prepared!
With the start of school just around the corner, it is time for us parents of kids with hemophilia to begin planning our annual meeting with our child’s new teacher. Back to school can be an intimidating time if you have a child with hemophilia. It can be scary to be leaving your child, in [...]