Browsing all posts in Recent Posts.
Jeryn’s Story
On November 11, 2005 my 11 month old son was diagnosed with severe Hemophilia A. We began infusing him with factor VIII for bleeds. Within 4 months, we began to notice the factor was not healing him as quickly. It was around then that we found out about his inhibitor. After lengthy discussion with his [...]
The Most Wonderful Day of the Year, if You are Prepared!
With the start of school just around the corner, it is time for us parents of kids with hemophilia to begin planning our annual meeting with our child’s new teacher. Back to school can be an intimidating time if you have a child with hemophilia. It can be scary to be leaving your child, in [...]
Kelsey: Our Little “Up” Baby
Article Update – since this article was originally written Patti Matthews has developed a separate blog site for Kelsey which you can visit at www.theupfamily.blogspot.com . Here you can get daily updates on Kelsey’s progress. I wanted to write an article about the unexpected coming of our new little baby and how surprises come in [...]
PRAYERS FOR BABY KELSEY
Our Sweetaffliction.com co-founder Andy Matthews and his wife Patti had a big surprise on Tuesday August 4, 2008. To everyone’s surprise their new baby Kelsey decided to make her appearance at 12:20 pm. She weighed 3 pounds 12 ounces and is 15 inches long! Patti went in for a normal sonogram that morning and the [...]
Make Needle Sticks A Treat!
At my speaking engagements, I always mention that if you can deal with hemophilia, then you can deal with anything life throws at you. Kids need to be proud of their hemophilia and learn to tell their friends about it in a positive way. I also believe that by being brave enough to infuse themselves [...]
Reflections on My knee replacement
Recently one of our sweetaffliction.com readers posted a comment on David Simmons’ knee replacement article. It seems our reader Greg did not have as positive an experience with his knee replacement as David Simmons did. Well unfortunately neither did I. We are not trying to persuade anyone needing a knee replacement not to get one [...]
Shout Out To C.J. Wilson
Sweet Affliction would like to send a special shout out and thank you to Texas Rangers pitcher C.J. Wilson who recently held a Guitar Hero charity event with proceeds going to a Texas Hemophilia Camp. Apparently C.J. has taken an interest in Hemophilia and is doing his part to help in the community along [...]
Baseball, Hotdogs, Apple Pie and Hemophilia
Below is our first blog post from a mother – we hope you enjoy this entry about Kyle – future second baseman of the Texas Rangers! Baseball…As American as apple pie, right? But, until recently, most hemophiliacs were discouraged from playing the sport, told the risk outweighed any possible benefits. Well, tell that to [...]
I have Severe Hemophilia and had a total Knee replacement!
The following article was written by our first guest blogger – David Simmons. It chronicles his decision on getting a knee replacement despite having severe Hemophilia. I had always known, following an inability to get rid of a stubborn limp after college and upon receiving several opinions from orthopedic surgeons, that I would someday require [...]
Hemophilia Fitness for the Brain!
We have started to talk a lot on sweetaffliction.com about how important it is to incorporate fitness into your daily life when living with hemophilia. Well just as important as it is to keep your body strong as a hemophiliac, it is just as important to keep your mind strong and healthy. Below is an [...]