I admire that you have not allowed hemophilia to slow you down. I was the first girl at hemophilia camp in Michigan in the seventies.

Since then ii have married and sailed our 43′ sailboat from London, England to Florida. I have also crewed on J-24′s with an all female spinnaker crew.

What I would like is advise on what I can do to get in the best physical shape for fusion. And what I can expect for recovery time

my names jay bowman i live in wv and im 19 years old and i have to get a double knee replacement im hemophiliac type a sever and i have close to no cartlege in my knees. my doctors suggested me to get a knee replacement early of 2010 and i tured it down but now my legs are far worse and im gonna have to get it done but im worried in many ways about goin thru with it.. so i been reading everybodys storys and there outcomes and its out put me in better thoughts about it! right now i cant hardly run and in and out of the hospitals for my knees every month and had to give up alot of activities i enjoyed.. now just doin everyday things about make me cry from all the ache in and pain.. and i dont wanna keep goin on like this.. so i guess surgery here i come. thanks everybody for the helpful and comforting stories and experiences with your surgery’s..
thanks. jay bowman

Jonas told me you also have Hep C and when he told me about your site I was excited to check it out. I read through your blogs and I am truly inspired. I hate that anyone has to fight this fight and put up with the suffering of this treatment. I have a alot of respect for the courage that people like you and Jonas have to be involved in something like this. I think your site and blogs will be motivational for Jonas and I am happy for that. I feel sad when I wonder if he thinks he’s the only one going through this. I wish you the best of luck and just remember that it will all be worth it in the end. The treatment seems to be doing wonders for Jonas and I am so happy he is able to be a part of it. Good luck to you and your family!!!!

I’ve been reading your blog for a few weeks and have found it to be absolutely inspirational. My husband started therapy this week, and it’s been so helpful to know what to expect. I gave my husband his first shot and have a few hot tiips for you. Put ice on first, then sit or stand up and grab as much skin as you can. He doesn’t have much fat on him either (all those sit-ups are working against him now then give the shot very quickly. He didn’t even feel it! Keep up the good work, and thanks for taking the time to blog.

- With undetectable virus you have a good chance of success with this therapy. That’s terrific!
My best wishes.

- IThe pINF / RIBA combination can cause depression and alienation. Involving your spouse in your therapy is cute and very positive. Asking her to assist can only strengthen your relationship. .

- I’m a touch concerned by the low platelet count. My hemophilia doc,, Craig Kessler here in DC, says that HCV therapy is associated with increased soft tissue bleeds (ie. organ rather than muscle). This might be something to keep an eye out for.

Best,
Mark Antell, a person who also has Hemophilia and HCV