Comments on: Welcome to sweetaffliction.com – A Hemophilia Blog

By: Joshua Davis

Joshua Davis — Wed, 27 Jan 2010 21:38:35 +0000

Got a little break between classes, I also wanted to say about hemophilia is that I couldn’t imagine having this condition back when there was no medical care. I couldn’t imagine bleeding internally or externally on my body and just praying for some miracle. We are blessed that we have the advanced medical technology that we have today. Kids growing up today, just keep in mind stay physically fit that means work out your joints, light weights, DO NOT let a bleed go untreated for to long, infuse as quick as possible, you will thank yourself later in life, because every time there’s blood that get’s into your joint’s (bleed) a long period of time there’s a huge chance that it will never heal completely (trust me I know) and more likely to have recurring bleed’s over and over until you have to have surgery or have to live with the pain for the rest of your life. What I found that help’s a lot, that is if u can, that I started doing recently and which I wish I did all along is prophylaxis, that means you infuse yourself every day or every 2 days even when you don’t have a bleed. That keep’s your factor level up, so that being less likely to have bleed. See yall later, Josh

By: Joshua Davis

Joshua Davis — Wed, 27 Jan 2010 19:16:16 +0000

I’m a 23 male living with hemophilia, just wanted to let some kid’s know that you might feel that hemophilia is a bad thing to grow up with, I know i did. But when I grew up, out of high school, it didn’t matter anymore to me. All I know hemophilia, is what made me who I am today, which I like. The care for others is most thing I like about myself, which i don’t think i would have if I didn’t have hemophilia. Well, I just wanted to throw that out there. Andy is a inspiration to me, wonderful guy, if you ever get to talk to him or meet with him, do it, great guy to talk to. Well I have to run to class. Talk to yall soon.

By: Anne

Anne — Fri, 19 Jun 2009 13:19:49 +0000

Thanks for starting this blog, this is great.

I just found out that my son has to leave our regular pharmacy and use either Caremark or Walgreens (thanks BCBSNC!) – I’m heartbroken. We loved our pharmacist. Is anyone else running into this problem?

By: Ken Pulley

Ken Pulley — Thu, 26 Feb 2009 05:51:19 +0000

Thanks for blogging. It’s great to see more of the Hemophilia Cmmunity letting their voice be heard. Both of you are great role models for our young kids looking to find their way in the world.

Thank you again for showing our sons there is a path for them.