Comments on: Reflections on My knee replacement http://www.sweetaffliction.com/recentposts/reflections-on-my-knee-replacement/ Sun, 15 Jan 2012 19:56:06 -0700 hourly 1 http://wordpress.org/?v=3.0 By: Shahin Cassim http://www.sweetaffliction.com/recentposts/reflections-on-my-knee-replacement/comment-page-1/#comment-262 Shahin Cassim Wed, 17 Nov 2010 09:40:59 +0000 http://www.sweetaffliction.com/?p=489#comment-262 Hi There, 41 year old Haemophiliac from South Africa (we spell it with an "e' as well). I have knee surgery on the 22nd nov 2010 (5 days from now). I have inhibitors as well, so this is really going to be a challenge. However the team around me are confident all will go well - it just has to. I am very nervous especially after reading all the comments from individuals who have had bad experiences. David, I pray that it does get better for you and I thank you for sharing your experience. I will make sure that I am not complacent about recovery. Please remember me in your prayers. God bless. Hi There,

41 year old Haemophiliac from South Africa (we spell it with an “e’ as well). I have knee surgery on the 22nd nov 2010 (5 days from now). I have inhibitors as well, so this is really going to be a challenge. However the team around me are confident all will go well – it just has to. I am very nervous especially after reading all the comments from individuals who have had bad experiences. David, I pray that it does get better for you and I thank you for sharing your experience. I will make sure that I am not complacent about recovery.

Please remember me in your prayers. God bless.

]]> By: Grant Winterbine http://www.sweetaffliction.com/recentposts/reflections-on-my-knee-replacement/comment-page-1/#comment-260 Grant Winterbine Tue, 26 Oct 2010 11:12:37 +0000 http://www.sweetaffliction.com/?p=489#comment-260 As a 46 year old Aussie haemophiliac (less than 1% factor VIII) who is almost at the stage where I will be having both knees replaced, I thank you sincerely for your advice and warnings. I am sorry to hear that after going through so much, you are limited in your post-op mobility. I have heard both good and bad outcomes for this procedure. I guess you just have to roll the dice and face the challenges. Although you also have to try to give yourself the best possible chance by living cleanly and exercising for fitness and optimum joint strength. Not so easy to do when target joints are angry and inflamed! I find hydrotherapy is a great help. All the best for the future. As a 46 year old Aussie haemophiliac (less than 1% factor VIII) who is almost at the stage where I will be having both knees replaced, I thank you sincerely for your advice and warnings. I am sorry to hear that after going through so much, you are limited in your post-op mobility. I have heard both good and bad outcomes for this procedure. I guess you just have to roll the dice and face the challenges. Although you also have to try to give yourself the best possible chance by living cleanly and exercising for fitness and optimum joint strength. Not so easy to do when target joints are angry and inflamed! I find hydrotherapy is a great help.
All the best for the future.

]]> By: Trish Taychouri http://www.sweetaffliction.com/recentposts/reflections-on-my-knee-replacement/comment-page-1/#comment-233 Trish Taychouri Fri, 05 Mar 2010 12:59:01 +0000 http://www.sweetaffliction.com/?p=489#comment-233 G'day from Australia! What a great website! Makes you feel like your not alone in the world facing our haemophilia challenges. My husband Alex has Haemophilia Factor IX (we spell it with an "E" in Oz]Ourlatest challenge is a knee replacement. He had this done 10 days ago and it has been a real challenge for him. We never know what to expect the next morning. He has had quite a few bleeds which were to be expected, I mean he is using muscles he hasn't used in about 2 years. We made the decision to have the replacement because Alex is only 35 years old and he was missing out on so much. We have two young girls who couldn't even go to the park with their dad or ride a bike with him. His sleepness nights were spent on painkillers and even they did'nt work for him. So it was either keep putting up with the pain or jump in the deep end and hope for a good recovery and a change in lifestyle. I hope his knee behaves so he can get on with the important things in life - playing his drums, fishing in his beloved boat and playing with his kids. As the days go on I will try to get back and let you know how he is getting on. FOR ALL YOU WIVES, GIRLFRIENDS & MUMS OUT THERE HANG IN THERE!! DON'T FORGET TO LOOK AFTER YOURSELF TOO! WE NEED PLENTY OF REST TOO OR WE WILL END UP GETTING RUN DOWN & WON'T BE ANY USE TO OUR BOYS. [DO I SOUND LIKE A MUM OR WHAT?] P.S. YOUR ROB THOMAS IS A STAR!! WE SAW HIM PERFORM IN FEBRUARY. FANTASTIC!!! G’day from Australia! What a great website! Makes you feel like your not alone in the world facing our haemophilia challenges. My husband Alex has Haemophilia Factor IX (we spell it with an “E” in Oz]Ourlatest challenge is a knee replacement. He had this done 10 days ago and it has been a real challenge for him. We never know what to expect the next morning. He has had quite a few bleeds which were to be expected, I mean he is using muscles he hasn’t used in about 2 years. We made the decision to have the replacement because Alex is only 35 years old and he was missing out on so much. We have two young girls who couldn’t even go to the park with their dad or ride a bike with him. His sleepness nights were spent on painkillers and even they did’nt work for him. So it was either keep putting up with the pain or jump in the deep end and hope for a good recovery and a change in lifestyle. I hope his knee behaves so he can get on with the important things in life – playing his drums, fishing in his beloved boat and playing with his kids. As the days go on I will try to get back and let you know how he is getting on.
FOR ALL YOU WIVES, GIRLFRIENDS & MUMS OUT THERE HANG IN THERE!! DON’T FORGET TO LOOK AFTER YOURSELF TOO! WE NEED PLENTY OF REST TOO OR WE WILL END UP GETTING RUN DOWN & WON’T BE ANY USE TO OUR BOYS. [DO I SOUND LIKE A MUM OR WHAT?]
P.S. YOUR ROB THOMAS IS A STAR!! WE SAW HIM PERFORM IN FEBRUARY. FANTASTIC!!!

]]> By: Peggy Moler http://www.sweetaffliction.com/recentposts/reflections-on-my-knee-replacement/comment-page-1/#comment-203 Peggy Moler Thu, 07 Jan 2010 04:40:54 +0000 http://www.sweetaffliction.com/?p=489#comment-203 Well I could write a book on knee replacements. My husband went in for a total knee replacement on Oct. 19th. While in the operating room he got an infection. We thought he would lose his leg. The following Monday they took him back to surgery and took out the part that they thought had the germ. After 2 weeks we got to come home. He had to have an I.V. line put in his chest and down his arm so that we could run antibotics thru him twice a day. These were the strongest he could have. He lost over 35 pounds. He couldn't hardly eat anything. After being home a few days he couldn't bend his leg so he had to go back and they put him to sleep and bent his leg. We was in the hospital for a total of 3 weeks. So much medicine and so much pain. He just quit going to the hospital for out patient therapy. He was going 3-5 days a week. He is still having to work his leg and exercise it daily. He still isn't able to work or be free of pain. This has truly been a nightmare. It isn't always as it seems. He is 61 and was in good health other than that pain from his knee. Now he may never work as he was able to before. We had so many people praying for us. I know his surgery was an odd deal but things like this does happen. Well I could write a book on knee replacements. My husband went in for a total knee replacement on Oct. 19th. While in the operating room he got an infection. We thought he would lose his leg. The following Monday they took him back to surgery and took out the part that they thought had the germ. After 2 weeks we got to come home. He had to have an I.V. line put in his chest and down his arm so that we could run antibotics thru him twice a day. These were the strongest he could have. He lost over 35 pounds. He couldn’t hardly eat anything. After being home a few days he couldn’t bend his leg so he had to go back and they put him to sleep and bent his leg. We was in the hospital for a total of 3 weeks. So much medicine and so much pain. He just quit going to the hospital for out patient therapy. He was going 3-5 days a week. He is still having to work his leg and exercise it daily. He still isn’t able to work or be free of pain. This has truly been a nightmare. It isn’t always as it seems. He is 61 and was in good health other than that pain from his knee. Now he may never work as he was able to before. We had so many people praying for us. I know his surgery was an odd deal but things like this does happen.

]]> By: Tabby Mayhan http://www.sweetaffliction.com/recentposts/reflections-on-my-knee-replacement/comment-page-1/#comment-91 Tabby Mayhan Wed, 15 Jul 2009 18:19:48 +0000 http://www.sweetaffliction.com/?p=489#comment-91 Wow, I hate to say it, but this is not a story I want to see a week before my brother's knee replacement surgery. I am so sorry that yours did not go well, however, every person is different. He has a great team of doctors and family behind him so we all pray for a great outcome. Wow, I hate to say it, but this is not a story I want to see a week before my brother’s knee replacement surgery. I am so sorry that yours did not go well, however, every person is different. He has a great team of doctors and family behind him so we all pray for a great outcome.

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