Browsing all posts in "hemophilia nation".

How Half-Life of Factor Really Works

by Andy Matthews with Dr. Mike Wang Bleeds were very common, in the 1970’s when I grew up.  The reason for that was that most people did not have access to factor, and many did not have the capability to use factor or Cryoprecipitate at home.  However, even today, there are many reasons why adult […]

Cycling Across America to Support Save One Life!

This Sunday, June 17, cyclist Barry Haarde, age 46, who has severe hemophilia A, will start a coast-to-coast 3,667-mile bike ride to raise funds for Save One Life. The ride will start in Astoria, Oregon, and end in Portsmouth, New Hampshire where he will arrive on August 6. This is the first time someone will […]

Reflections on My knee replacement

Recently one of our sweetaffliction.com readers posted a comment on David Simmons’ knee replacement article. It seems our reader Greg did not have as positive an experience with his knee replacement as David Simmons did. Well unfortunately neither did I. We are not trying to persuade anyone needing a knee replacement not to get one […]

support your local hemophilia chapter during economic hard times

Over the past year plus, I have had many conversations with our local chapter director regarding the surprising downturn in attendance at our chapter events. What makes this so confusing is that most of these events are 100% free of charge and have always been extremely well attended in years past. This decreasing attendance, to […]