Browsing all posts in "hemophilia".

Hemophilia Survey for $

Beacon Healthcare Communications, a healthcare communications company, is working on behalf of a pharmaceutical manufacturer in the hemophilia market.  We are in the process of recruiting patients (18 years old and older) and caregivers of children (12 to 17 years old) with either hemophilia A or B to participate in a very brief market research […]

Market Research Survey

Tribeca Communications, a healthcare communications company, working in the hemophilia community for over 13 years is recruiting patients (18 years old and older) and caregivers of children (12 to 17 years old) with either hemophilia A or B to participate in market research surveys. With the development of new factor products that will eventually be […]

How Half-Life of Factor Really Works

by Andy Matthews with Dr. Mike Wang Bleeds were very common, in the 1970’s when I grew up.  The reason for that was that most people did not have access to factor, and many did not have the capability to use factor or Cryoprecipitate at home.  However, even today, there are many reasons why adult […]

Cycling Across America to Support Save One Life!

This Sunday, June 17, cyclist Barry Haarde, age 46, who has severe hemophilia A, will start a coast-to-coast 3,667-mile bike ride to raise funds for Save One Life. The ride will start in Astoria, Oregon, and end in Portsmouth, New Hampshire where he will arrive on August 6. This is the first time someone will […]

The Awesome Benefits of Taekwondo

My wife Patti and I have a 5 1/2 year old son who is very active and “all boy all of the time,” if you know what I mean!   We were looking for some type of sport that our son would love but one that would also teach him to focus his energy and to have […]

Hep C Treatment Blog

Andy Matthews’ Hep C Treatment Blog December 30, 2012 Well, I have been very bad about keep up this post but really once you are on this therapy and it has cleared the virus and you are past most of the bad symptoms, there is not much to post.  The day of or after my […]

WRESTLING TO GET A KNEE REPLACEMENT

If you ask Charles what his favorite things in life are, he will reply without hesitation that his wife Amber, and two sons Jamey (three) and Max (four) are the lights of his life. Although Charles shares a similar passion for family with many other fathers and husbands, Charles is unique because he suffers from […]

Our Co-Founder David gets another ankle fusion

Ankle fusion. Sounds completely medieval. In a sense it is and I have had two of them now. My first was about five years ago, and my second was done recently on my right ankle July 13, 2011.  Why must one have an ankle fusion? Well if you have severe hemophilia A and were born […]

Spinning for Stronger Veins

Spinning for Stronger Veins                                                                             by Andy Matthews As a person living with hemophilia, I love anything to do with fitness and building great veins.  From the time I was a small boy I always wanted to be as strong as I could.  I have come across a great item that I think will really help build […]

Flying High With Hemophilia

Have you ever had a dream that you just knew you had to fulfill?  Something you just knew your life would not be complete without?  So it was for “Brownie”, a thirty-something airline pilot living (and flying) with hemophilia. Brownie started flying at the ripe old age of ten.  His first flight lesson recorded in […]