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Browsing all posts in "prophylaxis".

How Half-Life of Factor Really Works

by Andy Matthews with Dr. Mike Wang Bleeds were very common, in the 1970’s when I grew up.  The reason for that was that most people did not have access to factor, and many did not have the capability to use factor or Cryoprecipitate at home.  However, even today, there are many reasons why adult […]

Our Co-Founder David gets another ankle fusion

Ankle fusion. Sounds completely medieval. In a sense it is and I have had two of them now. My first was about five years ago, and my second was done recently on my right ankle July 13, 2011.  Why must one have an ankle fusion? Well if you have severe hemophilia A and were born […]

Flying High With Hemophilia

Have you ever had a dream that you just knew you had to fulfill?  Something you just knew your life would not be complete without?  So it was for “Brownie”, a thirty-something airline pilot living (and flying) with hemophilia. Brownie started flying at the ripe old age of ten.  His first flight lesson recorded in […]

Upcoming Hemophilia Sports Broadcaster

Twenty –one year old Andrew Schnitker has always loved football and hockey; and even though he has severe factor VIII hemophilia, these sports will continue to be a huge part of his life.  That’s right, because even though Andrew can’t play these sports due to two target knee joints, he has high hopes of becoming […]

Lessons on Prophylaxis

My name is Jonathan and I have severe Hemophilia A. I am 31 years old, married to the love of my life, have four kids, and I am a Financial Advisor. I have a real passion for the hemophilia community and am constantly looking for ways to give back. My wife and I started a […]

Baseball, Hotdogs, Apple Pie and Hemophilia

Below is our first blog post from a mother – we hope you enjoy this entry about Kyle – future second baseman of the Texas Rangers!   Baseball…As American as apple pie, right?  But, until recently, most hemophiliacs were discouraged from playing the sport, told the risk outweighed any possible benefits.  Well, tell that to […]

Helping Those with Hemophilia in Other Parts of the World

I wrote this article that appeared in the “OneVoice”  August 2008 newsletter for the Save One Life organization. Sweet Affliction would like to share it with you! It is titled: Why I am so passionate about giving back to hemophilia worldwide……..And why you should be too! At age 42, with all the problems that come […]