Browsing all posts in "Severe Hemophilia".

Cycling Across America to Support Save One Life!

This Sunday, June 17, cyclist Barry Haarde, age 46, who has severe hemophilia A, will start a coast-to-coast 3,667-mile bike ride to raise funds for Save One Life. The ride will start in Astoria, Oregon, and end in Portsmouth, New Hampshire where he will arrive on August 6. This is the first time someone will […]

WRESTLING TO GET A KNEE REPLACEMENT

If you ask Charles what his favorite things in life are, he will reply without hesitation that his wife Amber, and two sons Jamey (three) and Max (four) are the lights of his life. Although Charles shares a similar passion for family with many other fathers and husbands, Charles is unique because he suffers from […]

Our Co-Founder David gets another ankle fusion

Ankle fusion. Sounds completely medieval. In a sense it is and I have had two of them now. My first was about five years ago, and my second was done recently on my right ankle July 13, 2011.  Why must one have an ankle fusion? Well if you have severe hemophilia A and were born […]

Upcoming Hemophilia Sports Broadcaster

Twenty –one year old Andrew Schnitker has always loved football and hockey; and even though he has severe factor VIII hemophilia, these sports will continue to be a huge part of his life.  That’s right, because even though Andrew can’t play these sports due to two target knee joints, he has high hopes of becoming […]

I have Severe Hemophilia and had a total Knee replacement!

The following article was written by our first guest blogger – David Simmons. It chronicles his decision on getting a knee replacement despite having severe Hemophilia.  I had always known, following an inability to get rid of a stubborn limp after college and upon receiving several opinions from orthopedic surgeons, that I would someday require […]