Browsing all posts in February, 2009.

support your local hemophilia chapter during economic hard times

Over the past year plus, I have had many conversations with our local chapter director regarding the surprising downturn in attendance at our chapter events. What makes this so confusing is that most of these events are 100% free of charge and have always been extremely well attended in years past. This decreasing attendance, to […]

New sweet affliction logo

We just got our new sweet affliction logo and are excited to unveil it now on Let us know what you think about the new look!  Also, we are thinking about bringing some t-shirts and other fun stuff online to sale with the new logo on them. If you have any interest in purchasing […]

A Hemophilia Health insurance coverage guide

Sometime ago Andy put together this great list of things you should know about your insurance coverage that is primarily targeted at people who have hemophilia and are struggling with their hemophilia health insurance issues. We hope this will help those of you seeking guidance on this subject. Things you should know about your insurance […]

Insurance Lifetime Caps Bill Introduced

The following news just came to me via email from NHF. If this bill eventually passes it would be an incredible accomplishment for our community and everyone faced with lifetime insurance cap issues.  Lifetime Caps Bill Introduced   On Friday, February 13, 2009, Anna G. Eshoo (D-CA) and Jim Langevin (D-RI), along with Senators Byron […]

Helping Those with Hemophilia in Other Parts of the World

I wrote this article that appeared in the “OneVoice”  August 2008 newsletter for the Save One Life organization. Sweet Affliction would like to share it with you! It is titled: Why I am so passionate about giving back to hemophilia worldwide……..And why you should be too! At age 42, with all the problems that come […]

Hemophilia Personal Stories

Shortly, we will have a section featuring hemophilia personal stories including some from our own lives and those of others. Individuals living with Hemophilia have a wide array of incredible stories to tell – many of them dramatic and unique (like the time I accidentally stabbed myself playing with a deer hunting arrow when I […]

Hemophilia Fitness

We will soon be adding a lot of content to our Hemophilia Fitness section. This is an extremely important subject matter for Andy and I as we both try to remain very active moving into our mid forties. We hope to give other hemophiliacs fitness tips and articles that they can draw inspiration from in […]

“Tax Free” Insurance Premiums

A couple of days ago I was interviewed for a piece on KUTV news about “Tax Free” Insurance Premiums. You can view the story here. Under IRS Code Section 125, individuals are allowed to use “tax free” dollars to pay for individually owned, qualified insurance policies for you, your spouse, and any tax dependents which are NOT sponsored by an employer.