Welcome to sweetaffliction.com – A Hemophilia Blog
So it begins…… Sweet Affliction is our blog about Hemophilia. Shall we say – the Hemophilia lifestyle. Much of it will be autobiographical in nature focusing on our experiences living with the disease. Since we are both adults born prior to 1990, many of the stories and posts here will focus on HIV and Hepatitis C – two diseases that many OLDER Hemophiliacs like ourselves were infected with by contaminated blood products before there were effective processes in place to protect the blood supply. Today Hemophilia has become an extremely manageable disease. Patients and their families are blessed with a variety of EXTREMELY SAFE and very effective medicines and treatments. Many of THESE young family’s stories will unfold on this site as well. Some will be heartbreaking, but we know that MOST will be uplifting, engaging and leave lasting impressions in your memory as you read, listen and watch the stories present themselves. Hemophilia continues today to be a disease that flies under the radar with so many people and even healthcare workers having very little if any understanding or knowledge about the disease. Things like the fact that it is extremely common for a patient with Hemophilia to spend 1 million dollars annually in medical costs just for clotting medicine alone, with most patients spending at least $100,000. That fact alone makes this affliction a compelling one and illustrates the disaster of the current American healthcare and insurance landscape. We will focus on many of these types of topics as we progress down our life journeys and glimpse into the lives of many others. We hope you will enjoy this site and visit it often!
POSTED BY: DAVID